Comments on: How Stevens-Johnson Syndrome Affects the Eyes

By: Adminstrator

Adminstrator — Fri, 10 Apr 2026 10:32:37 +0000

In reply to JOANNE a Thorp. Yes, a person with Stevens-Johnson Syndrome (or the more severe Toxic Epidermal Necrolysis) can lose their hair. Hair loss is a recognized long-term complication of the intense skin inflammation and damage caused by these conditions, with hair sometimes falling out weeks to months after the acute illness.

By: JOANNE a Thorp

JOANNE a Thorp — Fri, 10 Apr 2026 02:45:41 +0000

Can a person who has this condition also lose body hair

By: Claire Grygotis

Claire Grygotis — Wed, 08 Jan 2025 18:55:01 +0000

I’m curious about this (I’m in VA). My neuro-ophthalmologist said I have low tear production to the point my eyelids scratch my eyes. I have chronic low Vit D & iron levels. allergic to sulfa, sulfites, sulfates, and at higher levels, my skin will react to sulfur in water (highly unusual to be allergic to all of them, but here I am). Have a dx of Ehlers-Danlos from a geneticist, (and some other odd and unusual dx). But what I’m most curious about is, I get Stephen’s-Johnathon’s syndrome from UV. I was tested and allergic to UV A, B, and C, which came on suddenly in my early 30’s (still have the issue in my mid-40’s) dx’d with uv tests and biopsy. I also get the reaction on my eyes. I have this reaction regardless of whether or not I’m on any meds. Have you seen this before and have you seen any correlation or causation between the reaction on the eye and MCAD, MCD, or EDS? I’m wondering because I constantly read research to try to figure all of this out, it make for a rather restrictive life if you’re used to being outside a lot and can’t even sit near windows)! Thanks in advance for any comments or thoughts! I appreciate your time and this post on your site!

By: john

john — Mon, 30 Oct 2023 15:12:06 +0000

Pain and vision loss cause by misalignment of eye lashes are just a few problems I have to endure.